價格：免費
更新日期：2018-08-19
檔案大小：123.8 MB
目前版本：1.1
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The Cure SMA Guide contains information on spinal muscular atrophy – care guidelines, treatments, current research and more. It also includes information on Cure SMA’s activities, as well as other local and national resources.
Cure SMA is dedicated to the treatment and cure of spinal muscular atrophy (SMA)—a disease that takes away a person’s ability to walk, eat, or breathe. It is the number one genetic cause of death for infants.
Since 1984, we’ve directed and invested in comprehensive research that has shaped the scientific community’s understanding of SMA. We are currently on the verge of breakthroughs that will strengthen bodies, extend life, and lead to a cure.
We have deep expertise in every aspect of SMA—from the day-to-day realities to the nuances of care options— and until we have a cure, we’ll do everything we can to support and advocate for those affected by the disease. Learn more about how you can help us reach a treatment and cure at www.cureSMA.org.
支援平台：iPhone, iPad